Glaucoma Study – FISH April-May 2010 Jamaica

Calvagna, M., Screening for Glaucoma. Retrieved September 9, 2009 from http://healthlibrary.epnet.com/GetContent.aspx?token=0d429707-b7e1-4147-9947-abca6797a602&chunkiid=19531

Leske, M. C., Connell, A. M, Schachat A. P. & Hyman L., (1994). The Barbados Eye Study. Prevalence of Open Angle Glaucoma. Arch Opthalmol, 112 (6), 821-829.

National Eye Institute. Glaucoma: What you should know. Retrieved on October 9, 2009 from http://www.nei.nih.gov/health/glaucoma/webglauc.pdf

Pouwer, F., Ad. H. J., Snoek, F. J., Heine, R. J., Van Der Ploeg H. M., (2001). Monitoring of Psychological Well-Being in Outpatients with Diabetes. Diabetes Care, 24 (11), 1929-1935.

The Glaucoma Foundation. About Glaucoma. Retrieved on October 1, 2009 from http://www.glaucomafoundation.org/about_glaucoma.htm

Thylefors, B. & Negrel, A. D., (1994). The Global Impact of Glaucoma. Bulletin of the World Health Organization, 72 (3): 323-326

Westaway, M. S., Seager, J. R., Rheeder, P., Van Zyl, D. G., (2005). The Effects of Social Support on Health, Well-being and Management of Diabetes Mellitus: A Black South African Perspective. Ethnicity and Health, 10 (1), 73-89.

 

 

 

 

 

 

 

 

 

 

 

Appendix (I) Study questionnaire& Consent Form

A cross-sectional, descriptive study to measure: Knowledge,   attitudinal  and  behavioral (Practices)  effects which a positive diagnosis of glaucoma may have on affected patients of the Eye Department of the FISH Medical Clinic, Gordon Town Road, St. Andrew, Jamaica

Questionnaire #_________)

Purpose of this study:

Because glaucoma is currently being diagnosed in eye clinics across Jamaica. This study is an effort to expand existing knowledge about how the condition (or family of disease) influences the attitude and behavior of affected persons. The findings could help improve treatment of the condition.

(iii) If you decide to participate in this study, the information which you give to the researcher will only be used for research purposes. Furthermore, your specific information will be held in the strictest confidence.

(iv)  Please mark the applicable response with a horizontal line.

 

1.1       <40

1.2       41 to 50

1.3       51 to 60

1.4        61 or older

 

2. Knowledge about glaucoma:

2.1       Why did you visit the Eye Doctor at that time?

2.1.1    For a routine eye test

2.1.2    Because of pain or other discomfort in the eye;

2.1.3    Fear of getting glaucoma;

2.1.4    Fear of becoming blind;

 

 

2.2       Which of the following are true about glaucoma?

2.2.1    Mostly affects persons 40 or older?

2.2.2    Can be controlled to prevent blindness

2.2.3    Sight lost to glaucoma cannot be regained

2.2.4    Can be cured by looking at the full moon?

3. Attitudes about glaucoma:

 

3.1 How do you feel about having glaucoma:

3.1.1      Very sad

3.1.2      Sad

3.1.3      Happy

3.1.4      Very happy

 

3.2       Are you a parent?

3.2.1    Yes

3.2.2    No

 

3.3       (If yes) how do you rate your concern that your child/children could inherit the condition:

3.3.1    No   concern

3.3.2    A little Concerned

3.3.3    Concerned

3.3.4    Very concern

3.4       If you are a parent, have you told your child/children about your glaucoma?

3.4.1    No

3.4.2    Yes

 

3.5       Are you willing to tell others (outside your immediate family) that you have Glaucoma?

 

3.5.1    Very unwilling

3.5.2    Unwilling

3.5.3    Willing

3.5.4    Very willing

 

3.6       How willing are you to educate others about glaucoma;

3.6.1    Very unwilling

3.6.2    Unwilling

3.6.3    Willing

3.6.4    Very willing

 

3.7.1      How do you feel about having to use eye drops every day to   prevent blindness from glaucoma?

3.7.1    Very bad

3.7.2    Bad

3.7.3   Good

3.7.4    Very good

 

 

3.8      How would you feel if the Doctor suggests that you undergo surgery to help control your glaucoma?

3.8.1    Very bad

3.8.2    Bad

3.8.3    Good

3.8.4    Very good

 

3.9       How do you rank your feelings about having glaucoma?

3.9.1    Very negative

3.9.2    Negative

3.9.3    Positive

3.9.4    Very positive.

 

4.         Universal variables:

4.1       Gender?

4.1.1    Female

4.1.2    Male

 

4.2       What is your approximate age?

4.2.1    <40

4.2.2    41 to 50

4.2.3    51 to 60

4.2.4    61 or older

 

4.3       Which of the following did you attend last:

4.3.1    Primary or all age school

4.3.2    Secondary, comprehensive or high school

4.3.3    Apprenticeship or vocational school

4.3.4    College-University

 

Thanks for participating

 

 

 

 

Patient’s name ___________________

Patient’s Signature _________________

Date ____________________________